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My Life with CF

My name is Madison, but I prefer to go by “Maddy”. I am 22 years old and from Cedar Rapids, Iowa. I was born with

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Cystic Fibrosis Is Not All Bad

May marks Cystic Fibrosis Awareness Month; a time to reflect on the challenges my illness presents in my life- constant pain, endless therapy and medication.

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Traveling with CF

Shortly after our son who is 3 was diagnosed with cystic fibrosis, I wondered if this would put a hold on our current lifestyle. We

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The CF Waiting Game

Our waiting started July 3rd, 2016. I was 33 weeks pregnant with our son, Emmett, and was sent to the ER for some mild spotting.

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‎Proteostasis Therapeutics, Inc., Boston, USA. developing novel therapies to treat the cause of #CysticFibrosis. Cystic fibrosis.

Getting Older with CF

I’m twenty-five years old. Yet, here I am about to tackle a piece that discusses my personal experience with “old age”. For those who are

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